Repository details

Clinical Research Metadata Repository

Name of repository
Clinical Research Metadata Repository
Additional name(s)
  • ECRIN MDR
Repository URL
https://newmdr.ecrin.org/
Subject(s)
Description
The MDR harvests metadata on data objects from a variety of sources within clinical research (e.g. trial registries, data repositories) and brings that together in a single searchable portal. The metadata is concerned with discoverability, access and provenance of the data objects (which because the data may be sensitive will often be available under a controlled access regime). At the moment (01/2021) the MDR obtains study data from: Clinical Trials.gov (CTG), The European Clinical Trials Registry (EUCTR), ISRCTN, The WHO ICTRP
Contact
  • christianohmann@outlook.de
  • jacques.demotes@ecrin.org
  • stevecanham@outlook.com
  • maria.panagiotopoulou@ecrin.org
  • mdr.team@ecrin.org
Content type(s)
Keyword(s)
Persistent identifier(s) of the repository
  • biodbcore-001575
Repository size
600.000 study metadata records; 1.000.000 data object records
Repository type(s)
  • disciplinary
Mission statement for designated community
https://newmdr.ecrin.org/About
Research data repository language(s)
  • English
  • French
  • German
  • Czech
  • Polish
  • Portuguese
  • Italian
  • Slovak
Data and/or service provider
  • service provider
Institution name
European Clinical Research Infrastructures Network
Additional name(s)
  • ECRIN
Identifier(s)
  • ROR:051ycea61
Country
European Union
Type(s) of responsibility
  • general
  • technical
Type of institution
non-profit
Start date of responsibility
2017
Institution name
National Institute for Nuclear Physics
Additional name(s)
  • Istituto Nazionale di Fisica Nucleare
  • INFN
Identifier(s)
  • ROR:005ta0471
Country
Italy
Type(s) of responsibility
  • technical
Type of institution
non-profit
Start date of responsibility
2017
End date of responsibility
2020
Institution name
Onedata
Country
International
Type(s) of responsibility
  • technical
Type of institution
non-profit
Start date of responsibility
2017
End date of responsibility
2020

Policies (1)

Policy Name
Legal Diclaimer

Database access

Type of access to research data repository
open

Database licenses (1)

Database License
Public Domain

Data access (1)

Type of access to data
open

Data licenses (1)

DataLicense
other

Data upload (1)

Type of data upload
closed
Enhanced Publication
yes
Quality management
unknown

Application programming interfaces (1)

API type
REST

Metadata standards (1)

Metadata standard name
Repository-Developed Metadata Schemas
Metadata standard scheme
DCC

Remarks

Remarks
GitHub: https://github.com/orgs/ecrin-github/repositories The MDR system was initially designed and developed in the context of the H2020 eXtreme - DataCloud(XDC) project, funded by the EU under grant agreement 777367. The next stage of development of the MDR is taking place within the H2020 EOSC-Life project, under EU grant agreement grant 824087, and is being largely carried out by ECRIN. The intention is to integrate that portal with the European Open Science Cloud's EOSC-hub services.
Entry date
2021-10-10
Last update
2024-04-11
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Cite this re3data.org record:

re3data.org: Clinical Research Metadata Repository; editing status 2024-04-11; re3data.org - Registry of Research Data Repositories. http://doi.org/10.17616/R31NJN1B last accessed: 2024-06-01